The Resource Critically Impaired Infants and End of Life Decision Making : Resource Allocation and Difficult Decisions

Critically Impaired Infants and End of Life Decision Making : Resource Allocation and Difficult Decisions

Label
Critically Impaired Infants and End of Life Decision Making : Resource Allocation and Difficult Decisions
Title
Critically Impaired Infants and End of Life Decision Making
Title remainder
Resource Allocation and Difficult Decisions
Creator
Subject
Genre
Language
eng
Member of
Cataloging source
MiAaPQ
http://library.link/vocab/creatorName
Bhatia, Neera
Dewey number
344.4104/1970832
LC call number
K4367.P43 -- .B48 2015eb
Literary form
non fiction
Nature of contents
dictionaries
Series statement
Biomedical Law and Ethics Library
http://library.link/vocab/subjectName
Terminal care - Law and legislation - Australia
Label
Critically Impaired Infants and End of Life Decision Making : Resource Allocation and Difficult Decisions
Link
https://ebookcentral.proquest.com/lib/oulaw/detail.action?docID=3569251
Instantiates
Publication
Copyright
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
  • Cover -- Title -- Copyright -- Dedication -- Contents -- Acknowledgements -- List of abbreviations -- Table of cases -- Table of statutes -- Table of legislative instruments -- 1 Introduction -- 1.1 Medicine, technology and the law -- 1.2 Concepts of life and death and the law -- 1.3 Individual autonomy -- 1.4 The importance of end of life decision making for extremely premature and critically impaired infants -- 1.5 Historical development of neonatology -- 1.6 The need to discuss the allocation of finite healthcare resources and infants -- 1.7 Purpose and structure of the book -- 1.8 Conclusion -- 1.9 References -- 2 The effectiveness of the best interests principle -- 2.1 Sanctity of life perspectives -- Judeo-Christian tradition -- Greco-Roman principles and the Hippocratic Oath -- Declaration of Geneva -- 2.2 The best interests principle and the concept of futility -- 2.3 Early case law involving infants from the UK -- 2.4 Legal and ethical challenges in the English seminal case of Airedale NHS Trust v Bland -- Sanctity of life -- Substituted judgment test -- Reliance on the medical profession -- Acts and omissions -- Does withdrawal of nutrition and hydration amount to starving to death? -- 2.5 Selected UK cases involving impaired infants -- 2.6 The turn of the millennium: Re A (conjoined twins) -- 2.7 Recent decisions: balance sheet of burdens and benefits -- 2.8 Early Australian cases involving impaired infants -- 2.9 Re Marion and the best interests principle in Australia -- 2.10 Re Marion (No 2), the best interests principle and the Family Law Rules 2004 -- 2.11 Recent cases involving impaired infants -- 2.12 The effectiveness of the best interests principle -- 2.13 Conclusion -- 2.14 References -- 3 Non-uniformity in clinical guidelines -- 3.1 The threshold of viability -- 3.2 The very nature of clinical guidelines
  • 3.3 Clinical guidelines: United Kingdom -- 3.4 Royal College of Paediatrics and Child Health: Withholding or Withdrawing Life Sustaining Treatment in Children: A Framework for Practice -- 3.5 British Medical Association: Withholding and Withdrawing Life-prolonging Medical Treatment: Guidance for Decision Making -- 3.6 General Medical Council: Treatment and Care Towards the End of Life: Good Practice in Decision Making -- 3.7 The UK EPICure studies -- EPICure Study 1: 1995 -- EPICure Study 2: 2006 -- 3.8 British Association of Perinatal Medicine: Management of Babies Born Extremely Preterm at Less Than A Framework for Clinical Practice at the Time of Birth -- 3.9 Nuffield Council on Bioethics: Critical Care Decisions in Fetal and Neonatal Medicine: Ethical Issues, 2006: a missed opportunity for the UK? -- 3.10 Clinical guidelines Australia: the Royal Australasian College of Physicians: Paediatrics and Child Health Division: Decision Making at the End of Life in Infants, Children and Adolescents (2008) -- 3.11 Australian guidelines: each hospital to its own -- 3.12 Perinatal care at the borderlines of viability: a consensus statement based on New South Wales and Australian Capital Territory consensus workshop (2005): another missed opportunity? -- 3.13 Academic discussion in this area -- 3.14 The need for uniform guidelines -- 3.15 Conclusion -- 3.16 References -- 4 The role, impact and importance of key caregivers and decision makers -- 4.1 Parents: conflicting interests and views -- The influence of media, development of medical science and technology -- Religious and cultural beliefs -- The common denominator: hope -- Parental ethnicity -- Infants' pain and suffering -- The 'dying process' -- Disability: perceptions and realities -- Relationships of trust and confidence with the medical team
  • Do parents carry guilt and the burden of responsibility in decision making? -- Parents as decision makers: fact or fiction? -- 4.2 Doctors: conflicting interests and views -- Religious beliefs and cross-country attitudes -- Doctors' perceptions of death, disability and decision making -- Different parents, different treatment: are parents treated differently by doctors? -- Are pre-term infants treated differently to other patients? -- The framing effect -- The roster lottery -- Should doctors be considered as functionaries? -- 4.3 The judiciary: over-reliance on medical opinion -- 4.4 Conclusion -- 4.5 References -- 5 Theories of distributive justice: healthcare and resource allocation for extremely premature and critically impaired infants -- 5.1 Ethical considerations in medical decision making for impaired infants -- Autonomy -- Beneficence -- Non-maleficence -- Justice (distributive) -- 5.2 Theories of distributive justice: extremely premature and critically impaired infants and resource allocation -- Consequentialist theory: utilitarianism and extremely premature and critically impaired infants -- Deontology: rights theory and extremely premature and critically impaired infants -- Egalitarian theory and extremely premature and critically impaired infants -- 5.3 Three theories, one conclusion: resource allocation should be a cardinal consideration in end of life decision making for extremely premature and critically impaired infants -- 5.4 Conclusion -- 5.5 References -- 6 Resource allocation: an objective approach in end of life decision making for extremely premature and critically impaired infants -- 6.1 Cost versus benefit -- 6.2 Quality adjusted life years (QALY) -- 6.3 QALY and impaired infants -- 6.4 The efficacy of the neonatal intensive care unit (NICU) -- Insights from the Unites States -- Australian and UK NICUs
  • 6.5 The profitability of the NICU -- 6.6 Health economics beyond the NICU -- Impact on the wider family -- Opportunity cost -- 6.7 Australian and UK economic budget pressures -- 6.8 The National Disability Insurance Scheme (NDIS) Act in Australia -- 6.9 Technology: doing more harm than good? -- 6.10 Determining the price and value of life: a common practice? -- Road death tolls -- Triage/emergency room categories -- The Australian Pharmaceutical Benefits Scheme (PBS) -- 6.11 The role of the judiciary in resource allocation discussion -- 6.12 Conclusion -- 6.13 References -- 7 Other observations and concluding remarks -- 7.1 An insight from the Netherlands and Belgium: Groningen Protocol: permissible neonatal euthanasia and beyond -- 7.2 Prevention rather than cure -- 7.3 Increases in educational awareness and reduction of poverty -- 7.4 Prenatal advanced directive -- 7.5 Parliamentary intervention -- 7.6 Concluding remarks -- 7.7 References -- Index
Dimensions
unknown
Edition
1st ed.
Extent
1 online resource (247 pages)
Form of item
online
Isbn
9781315738383
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Note
Electronic reproduction. Ann Arbor, Michigan : ProQuest Ebook Central, 2019. Available via World Wide Web. Access may be limited to ProQuest Ebook Central affiliated libraries.
Sound
unknown sound
Specific material designation
remote
System control number
  • (MiAaPQ)EBC3569251
  • (Au-PeEL)EBL3569251
  • (CaPaEBR)ebr11062791
  • (CaONFJC)MIL796419
  • (OCoLC)929509008
Label
Critically Impaired Infants and End of Life Decision Making : Resource Allocation and Difficult Decisions
Link
https://ebookcentral.proquest.com/lib/oulaw/detail.action?docID=3569251
Publication
Copyright
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
multicolored
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
  • Cover -- Title -- Copyright -- Dedication -- Contents -- Acknowledgements -- List of abbreviations -- Table of cases -- Table of statutes -- Table of legislative instruments -- 1 Introduction -- 1.1 Medicine, technology and the law -- 1.2 Concepts of life and death and the law -- 1.3 Individual autonomy -- 1.4 The importance of end of life decision making for extremely premature and critically impaired infants -- 1.5 Historical development of neonatology -- 1.6 The need to discuss the allocation of finite healthcare resources and infants -- 1.7 Purpose and structure of the book -- 1.8 Conclusion -- 1.9 References -- 2 The effectiveness of the best interests principle -- 2.1 Sanctity of life perspectives -- Judeo-Christian tradition -- Greco-Roman principles and the Hippocratic Oath -- Declaration of Geneva -- 2.2 The best interests principle and the concept of futility -- 2.3 Early case law involving infants from the UK -- 2.4 Legal and ethical challenges in the English seminal case of Airedale NHS Trust v Bland -- Sanctity of life -- Substituted judgment test -- Reliance on the medical profession -- Acts and omissions -- Does withdrawal of nutrition and hydration amount to starving to death? -- 2.5 Selected UK cases involving impaired infants -- 2.6 The turn of the millennium: Re A (conjoined twins) -- 2.7 Recent decisions: balance sheet of burdens and benefits -- 2.8 Early Australian cases involving impaired infants -- 2.9 Re Marion and the best interests principle in Australia -- 2.10 Re Marion (No 2), the best interests principle and the Family Law Rules 2004 -- 2.11 Recent cases involving impaired infants -- 2.12 The effectiveness of the best interests principle -- 2.13 Conclusion -- 2.14 References -- 3 Non-uniformity in clinical guidelines -- 3.1 The threshold of viability -- 3.2 The very nature of clinical guidelines
  • 3.3 Clinical guidelines: United Kingdom -- 3.4 Royal College of Paediatrics and Child Health: Withholding or Withdrawing Life Sustaining Treatment in Children: A Framework for Practice -- 3.5 British Medical Association: Withholding and Withdrawing Life-prolonging Medical Treatment: Guidance for Decision Making -- 3.6 General Medical Council: Treatment and Care Towards the End of Life: Good Practice in Decision Making -- 3.7 The UK EPICure studies -- EPICure Study 1: 1995 -- EPICure Study 2: 2006 -- 3.8 British Association of Perinatal Medicine: Management of Babies Born Extremely Preterm at Less Than A Framework for Clinical Practice at the Time of Birth -- 3.9 Nuffield Council on Bioethics: Critical Care Decisions in Fetal and Neonatal Medicine: Ethical Issues, 2006: a missed opportunity for the UK? -- 3.10 Clinical guidelines Australia: the Royal Australasian College of Physicians: Paediatrics and Child Health Division: Decision Making at the End of Life in Infants, Children and Adolescents (2008) -- 3.11 Australian guidelines: each hospital to its own -- 3.12 Perinatal care at the borderlines of viability: a consensus statement based on New South Wales and Australian Capital Territory consensus workshop (2005): another missed opportunity? -- 3.13 Academic discussion in this area -- 3.14 The need for uniform guidelines -- 3.15 Conclusion -- 3.16 References -- 4 The role, impact and importance of key caregivers and decision makers -- 4.1 Parents: conflicting interests and views -- The influence of media, development of medical science and technology -- Religious and cultural beliefs -- The common denominator: hope -- Parental ethnicity -- Infants' pain and suffering -- The 'dying process' -- Disability: perceptions and realities -- Relationships of trust and confidence with the medical team
  • Do parents carry guilt and the burden of responsibility in decision making? -- Parents as decision makers: fact or fiction? -- 4.2 Doctors: conflicting interests and views -- Religious beliefs and cross-country attitudes -- Doctors' perceptions of death, disability and decision making -- Different parents, different treatment: are parents treated differently by doctors? -- Are pre-term infants treated differently to other patients? -- The framing effect -- The roster lottery -- Should doctors be considered as functionaries? -- 4.3 The judiciary: over-reliance on medical opinion -- 4.4 Conclusion -- 4.5 References -- 5 Theories of distributive justice: healthcare and resource allocation for extremely premature and critically impaired infants -- 5.1 Ethical considerations in medical decision making for impaired infants -- Autonomy -- Beneficence -- Non-maleficence -- Justice (distributive) -- 5.2 Theories of distributive justice: extremely premature and critically impaired infants and resource allocation -- Consequentialist theory: utilitarianism and extremely premature and critically impaired infants -- Deontology: rights theory and extremely premature and critically impaired infants -- Egalitarian theory and extremely premature and critically impaired infants -- 5.3 Three theories, one conclusion: resource allocation should be a cardinal consideration in end of life decision making for extremely premature and critically impaired infants -- 5.4 Conclusion -- 5.5 References -- 6 Resource allocation: an objective approach in end of life decision making for extremely premature and critically impaired infants -- 6.1 Cost versus benefit -- 6.2 Quality adjusted life years (QALY) -- 6.3 QALY and impaired infants -- 6.4 The efficacy of the neonatal intensive care unit (NICU) -- Insights from the Unites States -- Australian and UK NICUs
  • 6.5 The profitability of the NICU -- 6.6 Health economics beyond the NICU -- Impact on the wider family -- Opportunity cost -- 6.7 Australian and UK economic budget pressures -- 6.8 The National Disability Insurance Scheme (NDIS) Act in Australia -- 6.9 Technology: doing more harm than good? -- 6.10 Determining the price and value of life: a common practice? -- Road death tolls -- Triage/emergency room categories -- The Australian Pharmaceutical Benefits Scheme (PBS) -- 6.11 The role of the judiciary in resource allocation discussion -- 6.12 Conclusion -- 6.13 References -- 7 Other observations and concluding remarks -- 7.1 An insight from the Netherlands and Belgium: Groningen Protocol: permissible neonatal euthanasia and beyond -- 7.2 Prevention rather than cure -- 7.3 Increases in educational awareness and reduction of poverty -- 7.4 Prenatal advanced directive -- 7.5 Parliamentary intervention -- 7.6 Concluding remarks -- 7.7 References -- Index
Dimensions
unknown
Edition
1st ed.
Extent
1 online resource (247 pages)
Form of item
online
Isbn
9781315738383
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Note
Electronic reproduction. Ann Arbor, Michigan : ProQuest Ebook Central, 2019. Available via World Wide Web. Access may be limited to ProQuest Ebook Central affiliated libraries.
Sound
unknown sound
Specific material designation
remote
System control number
  • (MiAaPQ)EBC3569251
  • (Au-PeEL)EBL3569251
  • (CaPaEBR)ebr11062791
  • (CaONFJC)MIL796419
  • (OCoLC)929509008

Library Locations

  • Architecture LibraryBorrow it
    Gould Hall 830 Van Vleet Oval Rm. 105, Norman, OK, 73019, US
    35.205706 -97.445050
  • Bizzell Memorial LibraryBorrow it
    401 W. Brooks St., Norman, OK, 73019, US
    35.207487 -97.447906
  • Boorstin CollectionBorrow it
    401 W. Brooks St., Norman, OK, 73019, US
    35.207487 -97.447906
  • Chinese Literature Translation ArchiveBorrow it
    401 W. Brooks St., RM 414, Norman, OK, 73019, US
    35.207487 -97.447906
  • Engineering LibraryBorrow it
    Felgar Hall 865 Asp Avenue, Rm. 222, Norman, OK, 73019, US
    35.205706 -97.445050
  • Fine Arts LibraryBorrow it
    Catlett Music Center 500 West Boyd Street, Rm. 20, Norman, OK, 73019, US
    35.210371 -97.448244
  • Harry W. Bass Business History CollectionBorrow it
    401 W. Brooks St., Rm. 521NW, Norman, OK, 73019, US
    35.207487 -97.447906
  • History of Science CollectionsBorrow it
    401 W. Brooks St., Rm. 521NW, Norman, OK, 73019, US
    35.207487 -97.447906
  • John and Mary Nichols Rare Books and Special CollectionsBorrow it
    401 W. Brooks St., Rm. 509NW, Norman, OK, 73019, US
    35.207487 -97.447906
  • Library Service CenterBorrow it
    2601 Technology Place, Norman, OK, 73019, US
    35.185561 -97.398361
  • Price College Digital LibraryBorrow it
    Adams Hall 102 307 West Brooks St., Norman, OK, 73019, US
    35.210371 -97.448244
  • Western History CollectionsBorrow it
    Monnet Hall 630 Parrington Oval, Rm. 300, Norman, OK, 73019, US
    35.209584 -97.445414
Processing Feedback ...